What I Talk About When I Say "Deafblind": Identity, Advocacy, and Usher Syndrome

Identity isn't just what you call yourself. It's what happens after you say it. For most of my life, I identified as Deaf or hard of hearing. But as my vision changed, I started naming something else too: I'm Deafblind. I have Usher syndrome. Both are true. But how I say them, when I say them, and who I say them to? That's where things get complicated.